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Research Partnerships

The development of research partnerships is a priority for InterRett. In this way, centres or clinicians with access to large numbers of patients with Rett syndrome can collaborate and make joint use of data.

We are keen to facilitate partnerships in terms of collection, storage and sharing of data. Memoranda of understanding can be established flexibly catering to the differing needs of various centres.

Centres currently developing partnerships include:

Israel Rett Syndrome Center
Tel Aviv
www.rettisrael.org

Dr Bao
Peking University
China

Dr Nadia Bahi-Buisson
Hospital Necker Enfants Malades
Paris

Dr Mercedes Pineda
Hospital Sant Joan de Deu
Spain

Dr Patrick MacLeod
Victoria General Hospital
Canada

Dr Violeta Medina-Crespo
Mexico

Contact us if you are interested in finding out more about bulk data collection and partnerships with InterRett.