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The development of research partnerships is a priority for InterRett.
In this way, centres or clinicians with access to large numbers of patients
with Rett syndrome can collaborate and make joint use of data.
We are keen to facilitate partnerships in terms of collection, storage
and sharing of data. Memoranda of understanding can be established flexibly
catering to the differing needs of various centres.
Centres currently developing partnerships include:
Israel Rett Syndrome Center
Tel Aviv
www.rettisrael.org
Dr Bao
Peking University
China
Dr Nadia Bahi-Buisson
Hospital Necker Enfants Malades
Paris
Dr Mercedes Pineda
Hospital Sant Joan de Deu
Spain
Dr Patrick MacLeod
Victoria General Hospital
Canada
Dr Violeta Medina-Crespo
Mexico
Contact us if you are interested in finding out more about bulk data collection and partnerships with InterRett.